Everett

Family Vacation

Family Vacation

We'll be getting on an airplane on Friday night. It's something I was never quite sure we'd do as a family. Atticus had his accessories, as I thought of them. He had fewer and fewer as he aged (oh god, how is it that he never saw age 5?). He had gotten rid of his PICC line, which had two lumens--one for lipids and one for TPN, and they each came with an IV pump and a chorus of beeps. And we had returned his suction machine, whose sound Atticus always hated, even though it was his life-saver those first few months.

Wishing for Holland

Wishing for Holland

If you have a child with special needs, at least three well-meaning individuals will give you a copy of the insipid piece of prose called "Welcome to Holland". I personally stared at it for 20-30 min every 3 hours in the broom closet of the PICU, while pumping breast milk. This tiny room contained a stool, a bedside table, a non-functional sink, and a copy of this tale-of-two-countries taped to the wall. To what? Encourage let-down? Hardly the thing mothers whose children are fighting for their lives need to see, but I felt like tearing it down would be impolite